I still think I have Secondary Adrenal Insufficiency. I've had it before*. The symptoms fit. The sequence of events and symptoms fit.
It makes the most sense.
SAI is supposed to be common too, making it more likely than other things.
So all these forays into other ideas are nothing more than idle due diligence. Some other diagnoses kind of fit, but they don't have the sequence of events behind them that SAI has.
If I hadn't been in the hospital and on so much prednisone and not had SAI before, I would be singing a different tune right now believe you me.
Even if there is some other medical issue, SAI is still a problem given what's been going on. They still need to check my levels and develop a decent taper and monitor the withdrawal. SAI is not going to go away no matter what happens. There still has to be a wean.
Also, the chest x-ray came back clear. Can't even see the tumor. It is an itty bitty thing.
I bet it will either be gone or won't have grown. I hope it was just a byproduct of how sick I was in March if that is even physiologically possible.
I know one person who knows one person who had a similar tumor situation and their itty bitty tumor was gone on the follow-up CT. It doesn't mean anything but I prefer to think about that person rather than the hubby's 80something relative getting 1/2 a lung cut out this year due to a similar, albeit much larger, lung tumor. (They are recovering well, by the way, and still living at home.)
So I'm still in the SAI camp. Do I believe there is a broader underlying issue at work? Yes, but I don't believe science can do anything about it, much like PCOS was unheard of 15 years ago when I started being symptomatic (and I don't think I actually have true PCOS anyway, but that's a whole new post). If I ever find a doc who wants to do the work to really figure everything out, then we'll do it, but until then I will settle for...
1.Being able to parent and be fully present with my child and family.
2.Being able to exercise without having to quit half way through or give it up completely.
3.Cooking and cleaning my house.
4.Driving without hitting anyone or anything.
5.Shopping/Leaving the house whenever I want without worrying about whether or not I'll tank.
6.Returning to full time work when the toddler is a bit older.
7.Returning to a full load of part time work until the time for #6 comes.
1-7 can be achieved with a diagnosis of and treatment for SAI. So can we stop f*cking around and just git 'r done already?
Can I please just have my ability to live a life back? Sooner as opposed to later?
Thank you.
*The current situation is so surreal to me that I find myself questioning if I really ever had SAI and then doh! I remember I had actual blood work documenting it and I even have a copy of the lab results. I am not crazy, the doctors are!
P.S. 7 mg today!
P.P.S. If I seem all over the place, saying one thing and then another and zig zagging, it's because I am. I am all over the place right now with this. I'm not consistent. Sorry. The brain no workee and I'm really stressed.
Not to mention baking up a storm in preparation for Tday tomorrow.
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