Anyone Speak Endocrinologist?

I heard back from the endo and was told to not wean too fast because I could crash again.

So does that mean stay on 5mg or go alternate day or what? Because they didn't specify, we are back to vague banalities.

Also, I did wean. In May. This is all stress dose prednisone. What do they mean by wean?

Although I did think my body was acting like it was going through steroid withdrawal from the last 5day x 5mg burst.

But that is, allegedly, impossible since 5mg is such a low dose and 5 days is not supposed to cause suppression.

Then again, we are talking about my extra stupid adrenals.

Which I really want to dig out of my body and smash with a hammer right now.

Except, I suppose, that won't really help me make cortisol.

So I got a response, but that is not the same thing as an answer.

Sigh. I don't know. I am having a hard time keeping my blood pressure up. Thankfully I start feeling like crap right around 100/60-70 so I've been good about getting salt and keeping things stable before they really tank.

(ETA: Hahahaha joke's on me. Now I can't seem to keep the pressure up despite some heavy salt dosing so I just took some prednisone. It's actually dropping further. WTF BBQ?)

Perhaps I need to go back to a daily dose and just taper slowly? Maybe I just need to do what will get me up and running and then taper down from there.

I haven't exercised in a week. The last two days I was So. Optimistic. about exercising only to poop out and need a nap.

In fact, I need a nap earlier than my toddler and it is a special kind of misery to hang on until she's ready to sleep.

This is so frustrating it is driving me to tears. I just want this to end dammit.