You Don't Want to Be Sick

On one of the low carb message boards I frequent, there is a person who maybe needs to be evaluated for Cushing's. Maybe.

I do think Cushing's is more frequent than we realize. There was a study that found many diabetics also had Cushing's. There's also a number of PCOS patients who actually have Cushing's. Not that they will ever be evaluated for it. Because it's so rare, you see. So why ever test for it, right?

Just to make it more fun, in case you didn't know, the care for Cushing's is poor, usually requires travel, is expensive and it's all on the patient to make medicine work for them. Which is like pulling teeth and very stressful.

A Cushing's diagnosis is not a magic bullet.

I gave my advice to the person and warned them to keep their expectations low of endocrinologists. Not only do endos routinely see thyroid and diabetic patients (seemingly) to the exclusion of all else, I suspect they also get a decent number of patients who think their weight issues are hormonal.

Which they are, technically, but, practically, medicine has little to offer.

Hormonal anything is a crappy diagnosis. We can't even get consensus on thyroid testing and care, which is a common problem! The care just gets worse from there.

So they came back and wrote something to the effect 'is it wrong that I want my weight problem to be Cushing's?'

*bangs head against wall*

After the hell I've been through? Yeah, it's wrong. There is nothing easy about a hormonal problem.

What should they want? What I want! Which is an easy diagnosis that tests well (plus doctors willing to do the tests) with an established and effective solution.

Given my experience thus far as a patient, I think that kind of diagnosis is a pipe dream.

What was the last slam dunk diagnosis you had? I think mine was pregnancy.